Living Will, Living Well: Reflections on Preparing an Advance Directive
Using the voices of ordinary people, clinical ethicist and nurse Dianne Godkin explores the end-of-life issues and emotions that arise when an individual sets out to prepare an advance directive (living will). Conversations with study participants, and the composite character of Alice, are forthright, practical, and uplifting. Written for individuals and their families who are thinking about creating an advance directive, and for healthcare providers who interact with these individuals, this...
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Using the voices of ordinary people, clinical ethicist and nurse Dianne Godkin explores the end-of-life issues and emotions that arise when an individual sets out to prepare an advance directive (living will). Conversations with study participants, and the composite character of Alice, are forthright, practical, and uplifting.
Encountering Death and Dying: Introduction 1Reflecting on an Uneasy DeathHonouring Martha's LegacyAsking the QuestionsDefining the TermsTracing the HistoryExploring the Benefits and BarriersSetting the StageIntroducing Alice1 Protecting Self and Others 15Noticing Advance DirectivesFocussing on the FutureListening AttentivelyDesiring Comfort and PeaceExperiencing the Death and Dying of a Loved OneControlling TechnologyFostering Family RelationshipsPreserving One's Identity2 Facing One's Mortality 43Meeting DeathInteracting with DeathAccepting DeathDisappearing DeathLiving LifeSitting Quietly3 Talking About Death 65Conversing at the Dinner TableJoking About DeathWidening the DiscussionConsidering a Parent's DeathImposing Limits on the DiscussionTalking to No One4 Choosing an Ally 81Naming an AgentSelecting the Best AgentTrusting Your Agent5 Getting It Done 95Gathering InformationPersonalizing the DataWriting and RewritingKeeping It SimpleFollowing the RulesReflecting on the ProcessLooking Toward the FutureClosing Thoughts: Conclusion 115Reconsidering ExpectationsSummarizing Key FindingsMessages for Healthcare ConsumersSpecific Challenges for Healthcare ProvidersApprehending DeathReference List 129Appendices 137App. A Guiding Interview QuestionsApp. B Sample Advance DirectiveApp. C Legislative GuidelinesApp. D Educational ResourcesIndex 151
