All Kinds of Love: Experiencing Hospice

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Author: Carolyn Jaffe

ISBN-10: 0895031477

ISBN-13: 9780895031471

Category: Community & Home Care - Home

All Kinds of Love: Experiencing Hospice presents a vivid and intimate view of hospice care through the eyes of a long-term hospice nurse. Her stories are accompanied by discussion of end-of-life issues that arise among the families she has served. Authentic, sensitive-a compelling read for healthcare and social worker and layperson alike.\ All Kinds of Love is a personal account of home hospice care based on Carolyn Jaffe's long experience as a hospice nurse. Each chapter presents a different...

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All Kinds of Love: Experiencing Hospice presents a vivid and intimate view of hospice care through the eyes of a long-term hospice nurse. Her stories are accompanied by discussion of end-of-life issues that arise among the families she has served. Authentic, sensitive-a compelling read for healthcare and social worker and layperson alike. All Kinds of Love is a personal account of home hospice care based on Carolyn Jaffe's long experience as a hospice nurse. Each chapter presents a different aspect of this care through stories about her patients, their families and their caregivers. The work differs significantly from others in its field because of its high human interest approach. Instead of clinical case histories or academic discussions, real-life stories bring home the deeper meaning of hospice care. They allow the readers to see themselves, their children, and their parents as participants in these end-of-life scenes. With the power of its stories, the book fills a gap in existing information for health-care professionals. They can be inspired and motivated to serve families better when armed with an under-the-skin as well as intellectual appreciation of the dynamics of dying persons and their families. A discussion titled Notes follows each story, focusing on the issues raised by that story. Assisted suicide, pain control, home care vs. institutional care, grieving and bereavement care, patient autonomy, and ingredients of a "good death" and "death with dignity" are some of the topics explored in these Notes. References to the current literature relating to these subjects provide facts and arguments so the reader can develop a fuller understanding of their history and controversies, and the dynamics of human behavior in death and dying. Public policy debate over issues of less invasive, less costly alternatives to traditional medical care requires a fuller grasp of the hospice option. Because of its narrative format, the book is an eye-opener to the values of this relatively new and still-underused, compassionate way to die.About the Authors Carolyn Jaffe, and two colleagues created Hospice of Metro Denver (HMD), the forst hospice in Denver, in 1978. Today, HMD is a $6 million-a-year operation with 40 nurses who help 120 patients a day. Jaffe, far from slowing down, still cares for patients herself, having served some 600 patients in her nineteen years with the program. Jaffe has been Nursing Representative for the National Hospice Organization. She won the Florence Nightingale award from the University of Colorado in 1990 for her contributions to health care in Colorado, and in 1995 the University of Denver conferred upon her its highest honor, The Doctor of Humane Letters. She is a popular speaker in public, organizational, and televised forums. Carol H. Ehrlich earned her Ph.D. in speech pathology and audiology from the University of Denver in 1965. She was on the faculties of the University of Denver , Columbia University College of Physicians and Surgeons and Colorado State University, then headed the audiology, speech pathology and learning disabilities department at Denver Children's Hospital, retiring as Chairperson Emerita. Her research was published in several journals including the Journal of Speech and Hearing Research, Archives of Otolaryngology and she has contributed chapters in several books, including Clinical Audiology, Williams and Wilkins. She became a Fellow of the American Speech-Language-Hearing Association in 1983, and since retiring has enjoyed writing.

ForewordPrefaceAcknowledgmentsHospice IsIntroduction1Ch. 1All Kinds of Love - Aggie5Notes: Unique Hospice Team; Relating to FamiliesCh. 2The Intimate Hour - Minnie41Notes: Home Care; Institutional CareCh. 3Only God Knows When - Heather65Notes: Grieving; BereavementCh. 4The Gift of Choice - Joseph109Notes: Assisted Suicide; Withholding Treatment; Advance Directives; Do Not Resuscitate OrdersCh. 5What's Best For Me - Henrietta155Notes: Dignity in Dying; Patient ControlCh. 6Cocktails and Images - William181Notes: Pain ControlCh. 7Ties That Bind - Sandy215Notes: Aids Care; Spiritual Care; HumorCh. 8Letters and a Diary - Jonathon245Notes: A Good DeathCh. 9Beginnings and Reflections: One Nurse's Personal Story283App. AOne Nurse's Perspective: Hospice Strengths and Weaknesses; Recommendations for Hospice295App. BCare Giver and Nursing Gems: A Collection of Practicalia311App. CCompassion Groups and Other Support317Bibliography of Additional Readings329Index343